Alma

Alma
Alma in College

Thursday, August 4, 2011

Losing control

It’s been at least a couple of weeks since I have last posted on this blog. As I predicted, we have been pretty active this summer and I simply haven’t had time. An update on Alma is well overdue.

Currently, we are dealing with extreme mood swings. Alma goes from laughing hysterically one minute to sobbing, yelling and slamming doors the next. I’ve had several people suggest we talk to the doctor about “tweaking” her meds. Not only is Alma on the maximum dosage for all of her medications, but changing medications and dosages also comes with a change in side effects. Essentially, we would be trading one issue for another.  We are not convinced that the benefits would outweigh these consequences. A lot of these opinions come from the day care and other “health care professionals” who want to fix the problem. Her doctor is fairly non-invasive and does not push extra medication. The grave reality here is that there really is no fixing anything at this point. All we can do is ride it out with her and work hard to protect ourselves from physical harm while comforting and supporting her to the best of our ability.

I mention “physical” harm because Alma is starting to lash out more. She threw a shoe at me the other day (luckily it was one of those Toms shoes and they are fairly lightweight). She also locked herself in the bathroom. We keep a key nearby so that she can not truly lock us out. On a positive note, these outbursts tend to tire her out pretty quickly so she falls asleep shortly after one. When she wakes up, she has forgotten that she was ever angry.

I do plan to continue posting her family recipes and will get back to that shortly. In the meantime, I do hope everyone is having a lovely and relaxing summer.


2 comments:

  1. HI LISE,
    HAVE MISSED YOUR POSTS AND WAS GLAD TO HEAR FROM YOU. THE MOOD SWINGS ARE A PART OF THE DISEASE AND THE OUTBURSTS AND "VIOLENCE" IS, IN MY EXPERIENCE, USUALLY THE STRAW THAT BREAKS THE CAMEL'S BACK WITH MOST FAMILIES REGARDING CONTINUING TO CARE FOR THEIR LOVED ONES AT HOME.IN BOTH OF THE CASES THAT I HAVE BEEN DEALING WITH THE SITUATION INVOLVED JUST ONE CAREGIVER DEALING WITH THE LOVED ONE AND ALTHOUGH THERE WAS FAMILY SUPPORT THERE WAS NO ONE WHO ALSO LIVED IN THE HOME AND WHEN THE VIOLENCE ESCALATED THERE WAS NO OTHER CHOICE THAN TO PUT THE PERSON FULL TIME IN A GROUP HOME. AFTER A PERIOD OF ADJUSTMENT THE PERSON IS DOING FINE(I VISIT HER EVERY WEEK) AND BOTH SHE AND HER HUSBAND ARE MUCH MORE PEACEFUL.
    OF COURSE YOU HAVE THE ADVANTAGE OF HAVING KEITH AND THE GIRLS TO BE WITH YOU EVEN THOUGH THE PRIMARY RESPONSIBILITY IS YOURS.
    I ADMIRE YOUR COURAGE AND THE LOVE AND DEDICATION WITH WHICH YOU DO THIS.
    YOU WILL BE LOVED AND SUPPORTED WHAT EVER YOU DECIDE.
    LOVE,
    JO

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  2. Dear Lise,

    Even with my gift of memory,I'm fuzzy on that point of our lives when I realized how courageous you are. I remember "my baby" who thought the large automatic machines in car washes were monsters. I remember holding you as a tiny girl during scary movies & when the noisy racing cars frightened you at Wall Stadium. Then,suddenly, you were an adult,a wife,a Mom,a daughter,a daughter-in-law and you are so extremely brave. I love both the little girl who used to be my baby daughter and I love my mature courageous adult daughter.

    As Jo said,no matter what you decide to do,we love you & you are most courageous and loving.I cannot begin to describe how proud I am of you. Our feelings towards you will never change regardless of what decisions you and Keith will make concerning Alma's future care.

    Love as long as ever lasts..

    Dad

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